We are a secondary school expecting our first student with cystic fibrosis to start school with us. We are trying to find funding to develop an existing rarely used toilet with shower into a newly refurbished room for her and subsequent CF students. Do you have a grant system we could apply for? If not do you know of any organisations we could get in contact with which may be able to help with funding?
Most hospitals that treat patients with CF have an outreach team that can advise - and the Cystic Fibrosis Trust are also available for advice and guidance - however we are not aware of any funding for disability access - maybe try your local authority?
I need some advice, my son who is 6 has eczema and asthma and food allergies. School are aware of this but it’s a constant battle to get them to do things right for my son even with medical hospital letters. Well there was an incident regarding my son being given extra medicine which the school deny but my son still says happened even now. Well I told school I didn’t want them doing anything for him so I went in for 3 days to do it myself once a day when he’s supposed to be done 3 times a day. Well 2 days later he was given pizza at school for dinner which he’s not allowed to eat as he has an allergy to tomato based food. Which he wears a badge stating and school kitchen and office are aware of this but still happened. I’m not happy now with my son school and I take him home now to feed him and cream him at dinner times and also provide snacks and his own juice as he can’t have at school. I just don’t know what to do as I’m not happy with him there and don’t feel like they dealing with his needs as this keep happening and when I go into complain I get told to take my child out of school and that they do more than enough for my child I just don’t know what else to do.
The situation sounds very stressful at present. I wonder if you could find a way to talk to school about your concerns. Is there a teacher or teaching assistant that you have a good relationship with? If there is perhaps you could request a meeting with the schools special needs co-ordinator or other staff member responsible for pupils with medical needs and ask if this person can also attend. Do you have a clinical nurse specialist at your local hospital? They often have a role in helping schools understand medical needs and how schools can work in partnership with parents. Some will attend meetings with parents at the school. If you have a medical plan in place at school, a review of this is a good way to talk about what is and is not working well in school. This can be a way to be both positive in relation to what is going well but also let school know what is not working. If you feel that the situation with school staff has broken down it may be helpful to contact the school governor responsible for special needs and explain your concerns.
I am a PhD student specialising in the cognitive biases associated with childhood anxiety. I am keen to get as much applied experience alongside my research as possible. I wondered if you knew of any opportunities for me to gain some experience?
Take a look at the very informative booklets in the Mental Health section of the resources on the website if you have not done so already. You need to register to access these but it is simple. Overall the key things to be aware of is that it is a serious condition and not something a child can snap out of. Cognitive Behaviour Therapy (CBT )is often used as a way to modify behaviours so that children and young people can get on with life.
Key things a teacher can do are
• understand the condition by reading up about it
• take the condition seriously
• liaise with family and CAMHs team to draw up a management plan for the child
• Don’t be afraid to make adaptations to classroom, school day and or curriculum, inclusion is about working towards meeting the needs of all children not making all children fit one system!
Hope this helps and thanks for contacting us. If you found the website useful please pass on the details to your fellow students.